EVENTS

Three peaks were successfully ascended by our brave mountaineers in both good and awful conditions. See more here.

NEWS

Deb and Pam visited BCH again to advise on the physio project. Watch how a special chair transformed a little boy's life here.

FUNDRAISERS

The winning number in September's 100 Club draw is 37 and the prize is £40.  Find out more and about how you could join here.

Current News

Official opening of Forest Glade, the new Belarusian children’s palliative care centre

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DSCF8358 cropped and compressedThe vision of a purpose-built, world class children’s palliative care centre in Belarus has been realised. To mark the opening of this fabulous new building, a red ribbon was cut by the Belarusian First Deputy Minister for Health Dmitry Pinevich and the Deputy Chair of the BCH Advisory Council Olga Kobyakova.S0258496 cropped and compressed

The facilities at Forest Glade are, by any standards, impressive and will be a centre of excellence from where BCH can support the growing number of children and families who need their services and facilitate the on-going training of health professions in the western model of children’s palliative care.

Forest Glade is on the outskirts of Minsk in a tranquil setting surrounded on three sides by woodland. The horse-shoe shaped building is welcoming, spacious, colourful and flooded with light. BCH’s main programme will continue to be Hospice at Home co-ordinated from the new building and there is a day-centre there where children, their carers and their well brothers and sisters can socialise and enjoy regular activities organised by hospice staff. There are treatment rooms where physiotherapy will be available and a wonderful multi-sensory room with changing lights, coloured fibre optic strands cascading over beanbags, different tactile experiences and mirrors. Take a peek here. The ten in-patient rooms which will provide respite care and end of life care are spacious, well equipped with medical services and aids, have en-suite wet rooms and direct, easy access to the gardens which all these rooms overlook through large floor to ceiling windows. There is also accommodation for parents/carers who wish to stay with their child.

Alexander Ardakov's brilliant piano recital

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Alexander Ardakov Beacon 2016 compressedAlexander Ardakov, internationally acclaimed pianist and patron of Friends of BCH, gave a stunning performance in aid of Friends of BCH in the new Spinney Theatre at The Beacon in Amersham.

The recital was given to mark the 30th anniversary of the nuclear disaster at Chernobyl and the 10th anniversary of Friends of the Belarusian Children’s Hospice (UK). This hugely enjoyable and up-lifting event raised over £1100 which will be used to pay the salary of BCH’s first physiotherapist. Paediatric physiotherapy is a new discipline in Belarus and Katya will help ensure that physically impaired children at BCH will reach their potential and maintain it.

Thirty Years After Chernobyl: BCH estimates three to five thousand children in Belarus are in need of palliative care

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ksenia croppped and compressedThe Belarusian Children’s Hospice (BCH) is 22 years old. Set up in response to ongoing problems following the Chernobyl disaster, it is creating a modern, unified system of children’s palliative care throughout Belarus based on the UK model of hospice care at home.

BCH cares for patients from 0 to 24 years of age with chronic and terminal conditions. Head doctor, Pavel Burykin, says that there is no single recognised method for counting the number of children that need palliative care. However, BCH has been creating its own register of such children in Belarus using its own methods that have taken into account UK and Polish experience. The register not only records numbers of children, but details of their care and care providers. The aim is to ensure that every single child and their family in Belarus who are in need of palliative care receive it.

‘We estimate that there are three to five thousand children in the country who need palliative care,’ says Dr Burykin.

A special relationship

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Anda_profile_photo_compressed.jpgA special relationship: The Latvian Children’s Palliative Care Society and The Belarusian Children’s Hospice working together for 18 years

By Anda Jansone, Chairman of the Children’s Palliative Care Society, Riga, Latvia

The Latvian Children’s Palliative Care Society and The Belarusian Children’s Hospice, both operating in post-Soviet countries, have been working in partnership for 18 years.

In 1998, at the International Palliative Care Conference in Warsaw, the directors of both these organisations discovered that their organisations were facing similar sets of problems and dealing with issues that had much in common.  They had a very useful exchange of ideas and experiences and regular meetings have continued ever since.

Store Collection

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tesco collectionA collection outside a local store raised just over £600 for Friends of BCH.  Thank you to all the jolly volunteers who held collection boxes, the customers who gave so generously and to Tesco Amersham for allowing us to collect.  The true spirit of Christmas!

Children's Art Project At Bch

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Light from Within - the theme of this project was to seek the light within children no matter what their physical challenges.  

painting 3 compressedProfessional artists worked with children at BCH to explore ways in which each of them could produce a picture using different tools or different parts of their body.  The pictures were displayed at Gallery U in Minsk.  All the child artists and their families managed to see the exhibition.  At the end of the show, the pictures were auctioned to raise money for BCH, some fetching as much as US$150. 

The project was sponsored by Gallery U with support from the Belarusian National Bank.  Scroll down to see the children painting and some of the wonderful pictures they made.